Book Review: The Reason I Jump by Naoki Higashida

The Reason I Jump by Naoki Higashida

The Reason I Jump by Naoki Higashida

The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism (2007) by Naoki Higashida

KA Yoshida (translator) David Mitchell (translator)

The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism by Naoki Higashida is like a Rosetta Stone, a secret decoder ring for autism’s many mysteries.

Author Naoki Higashida is a non-verbal boy with autism living in Japan. He’s able to write using a letter board, and this book of essays was published in 2006 when Higashida was 13 years old.

While Higashida doesn’t represent everyone on the autistic spectrum, his book certainly helps explain many autistic behaviors from the inside out. Higashida answers questions on a variety of topics, like, “Why do you flap your hands?” and, “Why do you like to jump?”

Higashida’s answers show amazing insight into the autistic mind, detailing a unique system for filing memories, as well as a perpetual struggle with sensory input, and the concept of linear time.

The mental gymnastics needed to overcome autism’s obstacles are tremendous, and sometimes brilliant. But it’s exhausting being inside Higashida’s head — you can only imagine how he must feel.

A quest for consistency — for something true and unchanging — is behind many autistic behaviors, as seen in Higashida’s response to the question, “Why do you like to spin things?”

“Watching spinning things fills us with a sort of everlasting bliss — for the time we sit watching them, they rotate with perfect regularity. Whatever object we spin, this is always true. Unchanging things are comforting, and there’s something beautiful about that.”

Many of Higashida’s introspective insights are universal, and written with a poet’s hand.

“Invisible things like human relationships and ambiguous expressions … these are difficult for us people with autism to get our head around.”

Invisible things are hard for all of us to grasp. Thoughts, emotions, memories, and faith; germs, virus, and disease. Our lives are ruled by Invisibles. They get us all in the end.

Asked what causes his panic attacks and meltdowns, Higashida’s response is perceptive and poignant:

“Stuck here inside these unresponsive bodies of ours, with feelings we can’t properly express, it’s always a struggle just to survive. And it’s this feeling of helplessness that sometimes drives us half crazy, and brings on a panic attack or a meltdown.”

Higashida’s apologetic tone resonates throughout this collection. He longs to connect, but he knows his strange behavior makes others uncomfortable, and it breaks his heart. It will break yours, too.

But The Reason I Jump is a double-shot of hope for parents of children with autism, especially those of us raising non-verbal / limited-speech kids. This book is proof of what we’ve known all along — our kids are thinking / feeling / loving people trapped inside uncooperative bodies. They wear their skin like an ill-fitting suit, constantly tripping on the hems, and getting caught up in the sleeves whenever they reach for something. Sensory Integration Disorder and the strange wiring of the autistic brain makes connecting with the outside world a challenge for our kids.

The Reason I Jump author Naoki Higashida

The Reason I Jump author Naoki Higashida

Higashida says the autistic mind focuses on details (flashing lights, a ladder, hoses, black tires, loud siren); while a typical mind will immediate recognize an object (a fire truck). Higashida sees a benefit in this reverse-engineered view of the world.

“Every single thing has its own unique beauty. People with autism get to cherish this beauty, as if it’s a kind of blessing given to us.”

Connect with a person with autism — see the world through their eyes — and you’ll be blessed, too.

Check out Naoki Higashida’s blog and other writings here: http://wretchesandjabberers.org/writing-naoki.php

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Coming Soon! My review of  another autism autobiography, Ido in Autismland by Ido Kedar

Change In Disney’s Disability Policy Makes Kingdom Much Less Magical

DisneyFamilyMickey

I look goofy standing next to Mickey.

“The happiest place on Earth” got a little less friendly last month when Disney announced it would no longer allow visitors with disabilities instant access to rides and attractions.

This is disappointing news to children with autism and their parents, myself included. When we visited Disney two years ago, we were told our son was eligible for a Guest Assistance Card. That card was king!

Disney guest assistance card

Disney’s Guest Assistance Card ruled! WTF, Mickey? Bring the GAC back, and help a disabled brother out!

Our Guest Assistance Card made the Magic Kingdom even more magical. We could enter any ride or attraction we wanted through the exit, and there was never more than a few minutes wait. In some cases, we were escorted past long lines of envious-looking people, and moved right to the front. We felt like part of the Magic Kingdom’s Royal Family!

This Is Why We Can’t Have Nice Things

Unfortunately, plenty of able-bodied people have taken advantage of Disney’s lax medical assistance policy. Due to confidentiality laws, Disney cannot ask guests to provide proof of a disability. Visit the Customer Service office at the Magic Kingdom, tell them you’re disabled, and they would give you a Guest Assistance Card, no questions asked. There were also reports of wealthy families hiring disabled people to pose as family members during Disney trips so they could enjoy the perks of the Guest Assistance Cards.

As a result of this widespread abuse, Disney will no longer allow disabled guests instant access to rides and attractions. Instead, people with disabilities will be given a ticket with a time they can return and enter the attraction without waiting.

The new policy takes effect October 8, and parents of special needs kids already foresee problems. Disabled guests are given tickets telling them exactly when they can ride, for example; “Come back in 40 minutes to ride Space Mountain.” So your special needs child doesn’t have to wait in a line, but he or she still has to wait.

And for some kids, that isn’t going to work.

Special Kids Were Actually Special At Disney

Vacationing with special needs kids is always a gamble, and amusement parks can be especially challenging. Children with autism like rides and attractions the same as any kid, but sometimes the sights, sounds, and crowds can be overwhelming and meltdown inducing. There’s a lot of walking and waiting, and some kids are a flight risk.

Disney’s welcoming attitude toward people with disabilities is what made the resort such an appealing vacation spot for parents of special needs children. Special kids got special treatment at Disney theme parks.

DisneyCastleNight

Cinderella’s Castle at night, bathed in purple haze.

And why not? Special needs kids are treated differently every place they go — school, church, the supermarket, etc. But at Disney, they got the Royal Treatment. That’s what made a trip to Disney so magical for special needs kids and their families.

But this new policy makes Disney theme parks much less appealing as a resort option. My son couldn’t have visited Disney World if it weren’t for the privileges our Guest Assistance Card afforded us. There’s no way he could have waited on those long lines (I doubt I could have, either).

Disney should tighten up its current policy; not toss it out. Maybe guests with disabilities should apply for special privileges in advance, and have to show proof of their disability — a doctor’s note, or proof you qualify for state or federal disability benefits. Work around the confidentiality laws, and weed out wrongdoers who abuse the system. Don’t punish people with disabilities who need the special services.

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Originally Published in SMART Publications, October 2013